ERA-EDTA President

Francesco Locatelli

Lecco, Italy

Registry Committee

Carmine Zoccali (Chairman)

Reggio di Calabria, Italy


Giuliano Colasanti

Milan, Italy

Bert van der Heijden

Rotterdam, The Netherlands

Reinhard Kramar

Wels, Austria

Torbjørn Leivestad

Oslo, Norway

Fernando García López

Madrid, Spain

Alison MacLeod

Aberdeen, Scotland

Bénédicte Stengel

Villejuif, France

Jane Tizard

Bristol, United Kingdom

Christoph Wanner

Würzburg, Germany

Kitty Jager

Managing Director

Paul van Dijk

Medical Information scientist

Ronald Cornet

Senior IT Specialist

Friedo Dekker

Senior Epidemiologist

Vianda Stel


Annick van den Broek

Gita Guggenheim
Contributions as of May 15, 2004

registries contributing individual patient data to the ERA-EDTA registry database

registries sending selected aggregated data to be included in the annual report
no registry/no contribution/data not eligible for analysis
Contact details
Postal address
ERA-EDTA Registry
Academic Medical Center
University of Amsterdam
Dept. of Medical Informatics, J1b-125
P.O.Box 22700
1100 DE Amsterdam
The Netherlands
Visiting address
Meibergdreef 9
1105 AZ Amsterdam
The Netherlands
Phone: +31 20 566 7637
Fax: +31 20 691 9840

The QUEST initiative: a first step forward, clinical guidelines monitoring and entering a new era of Registry Research in Europe

from Carmine Zoccali, Chairman of the ERA-EDTA Registry

The ERA-EDTA Registry is a joint venture of 32 national and/or regional registries. The basis of the European collaboration of registries is the common goal regarding data comparison, the need to offer a common response to public health questions in Europe and the willingness of sharing experiences. Our Registry collects RRT data on annual basis via national and/or regional renal registries. To increase compliance, the information asked is very limited. Basically the ERA-EDTA Registry includes data on gender, date of birth, cause of renal failure, date of the beginning of the first dialysis or renal transplantation, history of RRT with dates and changes of modality, treatment centre, date and cause of death and information concerning transfer from or to other renal registries.

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Carmine Zoccali
Read the slide presentations by Carmine Zoccali and Kitty Jager

The Quest initiative: a general framework  by Carmine Zoccali

The Quest initiative: where we are, where we want to go, and the road that has been chosen by Kitty Jager

The Renal Data Finder

from Giuliano Colasanti on behalf of the Renal Data Finder Group

Electronic Data exchange among collaborating nephrology units is important for comparisons, audit, and to allow the build up of high quality clinical databases. We refer here about a multicenter project, actually ongoing between 20 Italian Renal Units.


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The Third Biostatistics and Epidemiology Course - Gdansk, Poland 21-22 November 2004

From B. Rutkowski, Local Course Coordinator

The Third Biostatistics and Epidemiology Course was organized by the Department of Nephrology, Transplantology and Internal Medicine of The Medical University of Gdansk on November 21-22, 2004. 26 participants from several Central and Eastern European countries took part in lectures and practical classes led by experts in the field.

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The Second "Introductory Course of Epidemiology" - Toledo, Spain 13-15 March 2005


On March 13th-15th  the second ERA-EDTA course  was held in Toledo, Spain. Fifteen European nephrologists attended the course. The program of the course followed the format developed for the first course in Rome with adaptations suggested by the previous participants  and the course faculty.

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The third "Introductory Course of Epidemiology" will be held in Würzburg (Germany) on October 9-11, 2005.

On October 9-11, 2005 the ERA-EDTA Registry organises the third ERA-EDTA Epidemiology Course in Würzburg, Germany. Professor Wanner is the host of this course. The first two editions were held in Rome, Italy (September 2004) and in Toledo, Spain (March 2005). On the basis of surveys among course participants these courses can be considered to be a true success. This is a small class course and therefore interested persons are invited to contact immediately the course co-organizer and ERA-EDTA Registry Manager, Kitty Jager.
More information on this course are available on

Registry activities during the ERA-EDTA Congress in Istanbul (4-7 June, 2005)

4 June - QUEST expert Working Group meetings followed by a Business meeting for national and regional registries, 11.00 a.m. to 3.30 p.m.
5 June - ERA-EDTA Registry Report. CRR Auditorium 10.30 to 12.00 a.m.
6 June - Hands-on Course - Clinical Epidemiology. Museum 4. 10.30 to 12.00 a.m.
More information are available on
Forthcoming issues
Newsletter 6, June 2005
Newsletter 7, September 2005
Newsletter 8, December 2005