Disease-modifying anti-nephropathic drugs (DMANDs) – A definition proposed by the IWG of ERA
Patient associations
ERA actively collaborates with many patient societies
European Kidney Patients’ Federation
The foundation of EKPF activities is the health and well-being of patients with Chronic Kidney Disease (CKD).
Kidney Patient's Friends Charity Association
Kidney Patient’s Friends Charity Association was launched in 2016 to care for kidney patients in the Gaza Strip, and provides patients with health, social, psychological and developmental services.
From all groups such as women, children, youth, and the elderly. Promoting awareness and prevention of kidney disease and proper coexistence with it.
PKD International
PKD International is a non-profit, non-governmental association (NGO) based in Geneva, Switzerland.
Their mission is to improve the lives of an estimated 12.5 million affected by PKD worldwide, and their families and caregivers.
CompCure
CompCure is a non-profit association registered with the Danish Authorities. The registry of CompCure is a sub-registry of the ERK Registry.
Objectives:
– Improve outcomes in complement-mediated Kidney diseases
– Strengthen the understanding of complement-mediated kidney diseases
– Create more awareness of complement-mediated kidney diseases
– Create a platform for addressing the high unmet medical needs and rare disease burden beyond kidney disease
Kidney Alliance Philippines
Kidney Alliance Philippines is an organization committed to empowering and uniting kidney disease patients across the country to ensure their voices are heard and their rights protected.