Read the “Chronic kidney disease–associated pruritus (CKD-aP)” summary report.
Public Affairs & Advocacy
ERA strives to connect the needs of kidney patients with public decision-makers and policy-making bodies at the EU and national levels, and support advocacy actions at international and national levels
Advocating for kidney care
Kidney disease affects more than 850 million people worldwide, yet it remains underrecognised in public health agendas, underfunded in research, and insufficiently addressed in health policy. It is one of the fastest-growing non-communicable diseases and, without action, is projected to become the fifth leading cause of death worldwide by 2050 — and the third in Western Europe. Changing this reality requires more than scientific excellence — it demands a sustained, collective voice at the highest levels of decision-making.
The European Renal Association (ERA) is committed to translating its scientific and clinical expertise into meaningful policy impact. Through engagement with European institutions, national governments, and health authorities, ERA advocates for improved prevention, early diagnosis, innovation, and equitable access to treatment. Awareness raising is also central to ERA’s work, through campaigns targeting policymakers, health professionals, and the public.
ERA does not act alone. As an active member of key advocacy coalitions and alliances, ERA works with partners committed to patient-centred, evidence-based health policy. ERA is a founding member of the European Kidney Health Alliance (EKHA) and collaborates closely with its members to place kidney health on the European agenda. ERA is also part of the BioMed Alliance, promoting excellence in biomedical research and increased funding, and collaborates globally with the American Society of Nephrology (ASN) and the International Society of Nephrology (ISN).
Contacts
CKD: A growing global and European health challenge
EU Safe Hearts Plan
Recommendations. Cardio-Renal-Metabolic health check recommendations (ERA, EKHA and other CRM organisations, April 2026)
Statement. ERA welcomes the EU Cardiovascular Health Plan and calls for a stronger cardiovascular-renal-metabolic approach (ERA, January 7, 2026)
Response to consultations. ERA response to European Commission’s Call for Evidence on EU CVD Action Plan (ERA, September 15, 2025)
WHO Kidney Resolution / UN NCD Political Declaration
Statement. ERA welcomes the adoption of the UN Political Declaration on NCDs and urges the EU institutions to adopt comprehensive measures to tackle the growing burden of kidney diseases (ERA, January 12, 2026)
Article. ERA’s ABCDE framework for kidney disease prevention: turning the WHO kidney health resolution into action (ERA, January 8, 2026)
Statement. ERA statement on the Inclusion of Kidney Health in the UN Political Declaration on Universal Health Coverage (ERA, September 5, 2025)
Open letter. Open letter calling UN Member States to support the inclusion of kidney disease in the Political Declaration of the 4th UN High Level Meeting on Noncommunicable Diseases (NCDs) and Mental Health (ERA, June 2025)
Research and Innovation
Statement. BioMed Alliance calls for strong reforms in the next Horizon Europe (FP10) regulation proposal (BioMed Alliance, April 21, 2026)
Response to consultations. ERA WERA Committee response to consultation on the EU Action plan for women in research, innovation and startups (WERA Committee, February 23, 2026)
Statement. Strong health funding in MFF is essential for the wellbeing of EU citizens (BioMed Alliance, November 7, 2025)
Recommendations. BioMed Alliance shares key recommendations to improve health research in FP10 (BioMed Alliance, May 28, 2025)
Statement. Health is wealth: Policy makers must preserve investment to protect the health of EU citizens (BioMed Alliance, ERA and other organisations as co-signatories, May 5, 2025)
Medical Devices and In-Vitro Diagnostics
Statement. Healthcare professionals share their views on the future of the regulatory system for medical devices and IVDs (BioMed Alliance, March 21, 2026)
Response to consultations. Biomed Alliance response to the Call for Evidence on Medical devices and In Vitro Diagnostics – targeted revision of EU rules (BioMed Alliance, October 9, 2025)
Response to consultations. ERA response to European Commission’s Call for Evidence on Medical devices and in vitro diagnostics – targeted revision of EU rules (ERA, October 6, 2025)
Recommendations. New CORE-MD recommendations on strengthening clinical evidence for high-risk medical devices (BioMed Alliance, September 16, 2025)
Report. BioMed Alliance publishes new comprehensive review of regulatory framework for medical devices and IVDs (BioMed Alliance, March 25, 2025)
Recommendations. New Policy Recommendations focus on Key Shortcomings in MDR & IVDR (BioMed Alliance, January 9, 2025)
Health Data & Artificial Intelligence
Recommendations. How to balance innovation and privacy protection in the healthcare sector: BioMed Alliance recommendations on the Digital Omnibus proposal (BioMed Alliance, March 13 2026)
Recommendations. How the Healthcare & Research Community Can Help Build the European Health Data Space (BioMed Alliance, January 13, 2025)
Clinical Trials
Article. Randomized controlled trials in Europe: a call to action to protect national healthcare systems from the upcoming tsunami of kidney failure (ERA, January 24, 2026)
Recommendations. Clinical research in Europe: Putting quality and patient safety first. Recommendations by the Coalition for Reducing Bureaucracy in Clinical Trials
Health crisis preparedness
Response to consultations. ERA — EDTNA/ERCA — EKHA — EKPF response to the consultation on the EU prevention, preparedness and response plan for health crises (ERA, EKHA and other organisations, October 29, 2025)
Press release. Global Initiative Launched to Protect Kidney Patients During Crises and Emergencies (ASN-ERA-ISN, May 22, 2025)
Joint Statement from ASN, ERA, and ISN: Announcing the ASN-ERA-ISN Kidney Support Initiative (ASN-ERA-ISN, February 18, 2025)
Pharmaceuticals and Medicines
Statement. BioMed Alliance calls for a strong and ambitious Critical Medicines Act (BioMed Alliance, March 19, 2026)
Statement. Revision of the EU pharmaceutical legislation must find the right balance between access to medicines & sustainable reform (BioMed Alliance, September 3, 2025)
Statement. New statement raises awareness on key issues in the reform of the EU Pharmaceutical Legislation (BioMed Alliance, August 28, 2025)
Other policy developments
Article. ABCDE to identify and prevent chronic kidney disease: a call to action (ERA, March 19, 2025)
Article. Combating the rising tide of kidney advocacy in Europe: the seminal role of the European Kidney Health Alliance (EKHA) (EKHA, January 9, 2025)
Infographic. Chronic Kidney Disease and the Global Public Health Agenda: An International Consensus (ASN-ERA-ISN, July 3, 2024)
Statement. International Consensus Statement Published in Nature Reviews Nephrology Calls for Urgent Action to Address Chronic Kidney Disease on the Global Public Health Agenda (ASN-ERA-ISN, April 4, 2024)
Manifesto. Kidney Manifesto — An EU strategy to improve kidney care during the 2024-2029 mandate (EKHA, January 16, 2024)
Infographic. Show your Kidneys Love (EKHA, January 16, 2024)
ASN - ERA - ISN collaboration
On June 1, 2016, three major nephrology societies — the American Society of Nephrology (ASN), the European Renal Association (ERA), and the International Society of Nephrology (ISN) ― signed a declaration of collaboration. The organizations agreed that kidney disease is a global challenge that respects no boundaries or borders. Therefore, all available synergies should be used to fight kidney disease and improve the standard of care for kidney patients worldwide.
To create the best possible synergy, the three societies agreed to collaborate in:
- helping physicians who have just started careers as nephrologists or are considering this possibility, locally, regionally and nationally
- providing kidney professionals worldwide with more consistent, complete and up-to-date information about kidney diseases and treatments
- advocating to ensure access to care and to harmonize efforts to prevent and treat kidney disease worldwide
- creating joint initiatives to leverage the societies’ respective strengths.
Kidney Support Initiative Task Force
During a joint ASN, ERA, and ISN Leadership meeting on December 4, 2023, in Washington, it was agreed to develop a clear plan to strengthen cooperation among the three societies in response to natural and man-made disasters.
The Task Force aims to develop a unified emergency response strategy, enhance global preparedness, strengthen collaboration with partners, and ensure rapid, coordinated action with effective resource mobilisation and clinical guidance.
Biomedical Alliance in Europe
The Biomedical Alliance in Europe (BioMed Alliance) is a non-profit organisation representing 34 leading European research and medical societies uniting more than 400,000 researchers and healthcare professionals. The ERA is a member of the Biomedical Alliance in Europe.
The BioMed Alliance is committed to promoting excellence and innovation in the European healthcare field with the goal of improving the health and well-being of all European citizens
It promotes the interests of researchers and healthcare professionals organised in not-for-profit scientific medical associations and organisations, across all medical disciplines.
Contacts & Resources
Resources
EKHA
The European Kidney Health Alliance (EKHA) is a Brussels-based, multi-stakeholder platform established in 2007 to raise awareness of kidney disease and to promote kidney health as a public health priority across Europe. It brings together leading European organisations representing healthcare professionals, scientists, patients, and foundations working in the field of kidney disease.
In addition to the European Renal Association (ERA), full members include: the Dutch Kidney Foundation (DKF / Nierstichting), the European Dialysis and Transplant Nurses Association/European Renal Care Association (EDTNA/ERCA), the European Kidney Patients’ Federation (EKPF), the European Reference Network for Rare Kidney Diseases (ERKNet), the European Society for Paediatric Nephrology (ESPN), the European Society for Organ Transplantation (ESOT), and the International Society of Nephrology (ISN) (this is in alphabetical order, but we may want to re-order it using another criteria, e.g. relevance).
Furthermore, it brings together 40 affiliated members, including national patient organisations and national nephrology societies.
Since October 2025, the ERA is now sitting in the EKHA Board as EKHA’s Secretary.
Contacts & Resources
Awareness Campaigns
Led by the Strong Kidneys Committee of the European Renal Association (ERA) and in collaboration with our partners, the Strong Kidneys initiative is a European-wide movement dedicated to raising awareness about kidney health.
Our mission is to:
- Educate both the public and healthcare professionals on the important role kidneys play in overall health
- Promote the early detection and prevention of chronic kidney disease
- Empower individuals to adopt simple, sustainable lifestyle changes that support kidney health
Legacy Projects
A Congress should leave more than memories — it should leave a legacy. Through our schools outreach project, we connect with local students to raise awareness of kidney health, healthy lifestyles, and medical science, creating lasting value for the host city and its young people.

