The European Renal Association (ERA) is convinced that the best treatment for the individual patient can only be  obtained by a joined decision between the physician and the patient.
This can only be done if the patient is well informed. To help patients find the correct information, ERA has decided to produce a special webpage for patients with information on kidney disease and the treatment of it.

Below you will find some documents that can be helpful for you to further expand our understanding of kidney disease. The information documents have been compiled by a branch of ERA (called European Renal Best Practice or ERBP) that summarizes available knowledge so that physicians and other people can more easily find out which treatments might work or not. The documents below are patient versions of the documents ERBP produces, and have been carefully edited for content and style to be also understandable for non-medical professionals.

Living better with CKD – improving the quality of life of CKD patients on dialysis across Europe

All people living with CKD, including advanced stage patients on dialysis and awaiting transplants, have the right to a good quality of life, however there is little recognition of the impact that the disease and its side effects can have. Given that the World Kidney Day Steering Committee has dedicated 2021 as the year of ‘living well with kidney disease’, it is an opportune moment to highlight the struggles faced by patients living with CKD, including advanced stage patients on dialysis or receiving transplants. At the heart of this is a drive for plans and actions toward achieving per[1]son -centered wellbeing. The objective of this paper is to raise awareness about the devastating impact of advanced stage kidney disease on the quality of life of patients. In doing so, it makes three recommendations to European policymakers for changes that could improve the quality of life of individuals on dialysis.

Blood use in Europe: learning from the impact of COVID-19

This policy briefing, developed by the Blood and Beyond initiative, sheds light on how the COVID-19 pandemic affects blood use, blood transfusion services, and patients in whom transfusions are clinically indicated. The paper provides suggestions to address the challenge and depicts why Europe needs a coordinated vision on the future of blood use more than ever, focusing in particular on the shift to optimized management of the patient’s own blood – a concept known as patient blood management (PBM) and endorsed by the WHO.

The paper was published on May 12, 2021, ahead of the European Commission-Italian G20 Presidency Global Health Summit – set to discuss learnings from the COVID-19 crisis healthcare systems strengthening and multilateral cooperation.

The pandemic underlines the necessity to rethink blood use in Europe and creates additional impetus for reconsidering policy frameworks in place, current clinical practices, education as well as research & data collection efforts; and reveals the potential of alternative, innovative approaches including patient blood management (PBM).

The Nephrology Cookbook – Healthy Food for Healthy Kidneys

A collaboration between the National Societies of Nephrology in Europe and ERA

The European Renal Association  (ERA) does not offer medical advice. Information in all its publications, including its website and social media, is of a general nature and should not be used for the diagnosis or treatment of specific individuals. ERA cannot engage in correspondence of any sort about such matters. ERA also cannot recommend or provide information about where, or from whom, to obtain healthcare services. If you have a medical problem or require medical advice, you should consult a doctor or other appropriate healthcare professional.